• Survival rates are not the same as mortality rates

    Yesterday’s post drew a stronger response than I expected.  Surprisingly, the email I received was about evenly split between people who claimed no one serious ever says “we have the best health care system in the world” and people who claimed “we have the best health care system in the world”.  I wish I could somehow get you all to talk to each other.

    Regardless, many of the emails attesting to the superiority of the US health care system proclaimed “Our survival rates for [fill in the cancer] are better!”  And while we can argue whether our ability to extend the life of a relatively small number of people a short period of time is the true hallmark of quality, it’s our fixation on survival rates and not mortality rates that is telling.

    Mortality rates define the number of people who die of a certain cause in a year divided by the total number of people.  For instance, the mortality rate for people with lung cancer in the United States is 53.4 per 100,000 people.

    Survival rates are something else entirely.  They calculate the percentage of people with a disease who are still alive a set amount of time after diagnosis.  The five year survival rate for people with lung cancer in the US is 15.6%.

    But here’s the thing.  You can only decrease the mortality rate by preventing death, or curing the disease.  That’s really it.  That’s a cure or a life extension, and both are unequivocally good.  Survival rate, however, can be increased by preventing death, curing the disease, or making the diagnosis earlier.

    And there’s the rub.  Let’s say there’s a new cancer of the thumb killing people.  From the time the first cancer cell appears, you have nine  years to live, with chemo.  From the time you can feel a lump, you have four years to live, with chemo.  Let’s say we have no way to detect the disease until you feel a lump.  The five year survival rate for this cancer is about 0, because within five years of detection, everyone dies, even on therapy.

    Now I invent a new scanner that can detect thumb cancer when only one cell is there.  Because it’s the United States, we invest heavily in those scanners.  Early detection is everything, right?  We have protests and lawsuits and now everyone is getting scanned like crazy.  Not only that, but people are getting chemo earlier and earlier for the cancer.  Sure, the side effects are terrible, but we want to live.

    We made no improvements to the treatment.  Everyone is still dying four years after they feel the lump.  But since we are making the diagnosis five years earlier, our five year survival rate is now approaching 100%!  Everyone is living nine years with the disease.  Meanwhile, in England, they say that the scanner doesn’t extend life and won’t pay for it.  Rationing!  That’s why their five year survival rate is still 0%.

    The mortality rate is unchanged.  The same number of people are dying every year.  We have just moved the time of diagnosis up and subjected people to five more years of side-effects and reduced quality of life.  We haven’t done any good at all.  We haven’t extended life, we’ve just lengthened the time you have a diagnosis.

    Think this is far fetched?  In England women are screened by mammography every three years starting at age 50, yet in the United States the American Cancer Society recommends women are screened by mammography every year starting at age 40.  For a woman diagnosed with breast cancer in 2001, the five year survival rate in the US was 89.1%; in England it was 80.3%.

    The mortality rates?  The American Cancer Society’s Cancer Facts & Figures 2009 reports it’s 25.0 per 100,000 women in the US and Cancer Research UK reports it’s 26.7 per 100,000 women in England.  That’s not as big a difference.  Hard to believe we’re spending almost two and a half times per person for health care what they do over there.

    (h/t Factcheck.org for some links)

    UPDATE: This in no way means I’m opposed to mammography and/or early detection for breast cancer.  But there is a point at which we go overboard.  We need to recognize that and find the sweet spot for screening.  Moreover, that’s not what this post is about.  It’s about cherry picking statistics to make us look better than we are.

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    • Dr. Carroll:

      Thanks for posting this interesting factoid – again. I know I’ve read it on your blog before.

      I’m curious what portion of the very real 2x spent on healthcare over most developed nations you think might be attributed to this technology-driven early-detection longer-maintenance phenomenon? Big percentage? Or small?

      Aren’t there ethical boundaries that medical professionals consciously do not cross because they know if they detect a tumor (for instance) and there is no reasonable treatment for it, they really shouldn’t be pushing the screening? If so, the scenarios you share with us (on this topic) must be accompanied by “treatments” that actually derive some benefit for the patient. But if mortality rates aren’t changed that much, is the only benefit the ever-intangible “peace of mind?”

      Dale

    • Dale,

      You ask some excellent questions. And you will forgive me, I hope, if I repeat some posts as I get settled in. There are a lot of people here who didn’t see them, and some are necessary grounding (such as the moral hazard) for further work.

      I’m going to answer in another post.

      Aaron

    • Much thanks. Just read it. Thanks for the clarification.

      Regards,
      Dale

    • On the other hand, mortality rates are also subject to alot of other factors as well. For example, Japan’s mortality rates for some forms of cancer, are most likely related to diet or other population lifestyle factors as well as any other health care factors. In other cases it might be as simple as one country people will die of heart disease before they get cancer. Not trying to say that statistics are meaningless, just that in almost all cases they need a lot of discussion behind them.

      Also, if you have a national government who wants to push people into more private insurance, you’d do what the Thatcher government did. They minimizes supporting the NHS, though they didn’t dare eliminate it. Health care statistics in UK have gotten better since the Labour Government under Blair/Brown put more funding into it and tried some reforms within the system.